Because TLC is a combined preschool and pediatric therapy center, we work with both healthy, thriving children and medically fragile children. Sometimes our medically fragile children make huge strides in gaining strength and independence, but sometimes the challenges they face are far greater than any a child should ever be asked to overcome.
Riley is a seven year old boy with bright blue eyes and an infectious giggle who has been part of the TLC community since 2010. In 2013 he was diagnosed with PKAN, a progressive neurological disorder that causes progressive degeneration of specific areas in the central nervous system, affecting movement and muscle tone. Recently, Riley has had rapid progression of this disease and has been at Children’s Hospital for two weeks in and out of medically induced comas to try to help bring him relief.
Seeing Riley shift from a vibrant, healthy child who wants to do normal things like play and be with his family to a child who can't leave his hospital bed has been extremely difficult both for Riley and those who love him, including his family and the TLC staff who have worked with him for six of his seven years.
Riley's family has partnered with the Martyred Angels charity out of Boulder, who is sponsoring a GoFundMe campaign to help pay for Riley's medical expenses, expenses that are consuming most of the family's income (Riley's primary caregiver is his mother Erin, a single mom). Right now the primary focus of Riley's care is on making him comfortable for the time he has remaining with his family. Please keep Riley and his hope for recovery in your thoughts, and be thankful for everyday your children are healthy.
As Riley is part of the TLC family, we're sharing his story and GoFundMe page here, should anyone be interested in helping him and his family during this very difficult time.